Everything went well with port placement and her lumbar puncture. She will begin her first IV chemo in about an hour. Still no official diagnosis, but our oncologist has sent her case to the Mayo Clinic and Johns Hopkins. The first 29 days are the same treatment for the two types they are looking at, so we feel good proceeding. Yesterday I mentioned some hard conversations that Adeline initiated, and after processing, today I want to elaborate. She had seen a St. Jude’s commercial that said 1 in 5 children with cancer will die. And while those are not the statistics for her diagnosis, it still scared her. So she asked her doctor about it. And what he said will stay with me forever. He likened death to “Voldemort.” And just how no one in the books wants to call Voldemort by name, no one wants to talk about death and dying because it’s too scary and overwhelming. But it’s an inevitable reality for all of us. And then he said that while Harry was still afraid, he had the bravery to call him by name and to face him head on. And that’s my Adeline. A true Gryffindor.
Every three minutes, someone in the US is diagnosed with a blood cancer. This is Adeline's story. Her desire is for transparency in its telling, and from the start we have followed her lead. All vulnerable photos and medical information are shared with her consent.
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