I cried today, which probably doesn’t seem surprising. But due to being medicated for my OCD and generalized anxiety disorder, tears are few and far between. In fact, I could probably count on two hands the number of times I’ve cried since Adeline’s diagnosis. So today when I called the benefits coordinator for my district to discuss a change in insurance, the last thing I expected was to end up crying on the phone. The insurance plans being offered by my district are changing, and our current insurance plan is no longer an option. Don’t get me wrong I’m so thankful we have insurance. But the thought of trying to figure out if *every single doctor* involved in Adeline’s care accepts our new insurance was overwhelming and sent me over the edge. This includes oncologists, pathologists, radiologists, cardiologists, anesthesiologists/sedationists, nutritionists, physical therapists, surgeons, emergency room doctors, etc. (For those is Central Texas, we currently have Scott & White, so I know that every single person we come in contact with at A’s treating hospital is in network.) In the long run, it really doesn’t matter. I know for a fact that 2-3 months in to our new plan year, Adeline will have met her out of pocket maximum. And I also know that we will do whatever it takes and see whichever doctors we need to see to keep Adeline healthy. But today it was too much. And I’m thankful for the sweet woman in HR who listened to me, HEARD me, and found a way to do what she could to take a little off of my load.
Every three minutes, someone in the US is diagnosed with a blood cancer. This is Adeline's story. Her desire is for transparency in its telling, and from the start we have followed her lead. All vulnerable photos and medical information are shared with her consent.
Tuesday, May 10, 2022
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